ESTRATÉGIAS DE ENFRENTAMENTO NA VIVÊNCIA DA MATERNIDADE FRENTE À EPIDERMÓLISE BOLHOSA
DOI:
https://doi.org/10.18471/rbe.v37.51888Keywords:
Doenças Raras. Epidermólise Bolhosa. Poder Familiar. Cuidado da Criança. Enfermagem PediátricaAbstract
Objective: to know the coping strategies used by the mother of an infant with Epidermolysis Bullosa. Method: a single case study with a qualitative approach carried out with the mother of a six-month-old child with a clinical diagnosis of Epidermolysis Bullosa. Data collection took place between February and March 2020 at the participant's home, through in-depth interviews and observation. The narratives were subjected to thematic content analysis. Results: the thematic categories 'The (re)signifying of motherhood after the diagnosis of Epidermolysis Bullosa' emerged, which addresses the moments of discovery of the rare disease. And ‘The use of the internet as a resource for coping, which presents the movement to acquire theoretical knowledge to enable maternal care for the child. Conclusion: the study made it possible to apprehend the coping strategies used in the experience of motherhood before the birth of a child diagnosed with Epidermolysis Bullosa.
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NURSING SCHOOL
POSTGRADUATE PROGRAM IN NURSING
UNIVERSIDADE FEDERAL DA BAHIA
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